Kisses for Daddy
Sarah was there for "Rounds" with the Doctors this morning and basically not much has changed. They have decided to pull the Central Line from her chest (equal to the old Broviac) and place another one in the failed site in her right groin. The chest drainage tube appears to be blocked and they are planning to send someone from Radiology to manage that. While the blood clot seems to pretty much have disipated, there appears to be some air in the cavity. The doctors are working endlessly to attempt to sedate Ellie with meds and to juggle the medications with all their side effects and contraindications. They are still planning (hoping) for extubation Monday, sometime.
A heartfelt "thank you" to you all - Loretta
After a long night of movement and struggle with Ellie, John was awarded one precious "daddy" moment this morning. Ellie reached up and put her arms around John's neck, she pulled him close to her face, and tried to kiss him 3 little kisses, and then she mouthed the words "I love you".
[Dictated from Sarah]
posted @ 9:40 AM
20 Comments:
"Oh, that my words were recorded, that they were written on a scroll, that they were inscribed with an iron tool on lead, or engraved in rock forever!
I know that my Redeemer lives, and that in the end He will stand upon the earth.
And after my skin has been destroyed; yet in my flesh I will see God; I myself will see Him with my own eyes - I and not another.
How my heart yearns within me!"
Job 19:23-27
Happy Easter, Dear Ones! We have you on our hearts and in our prayers today all the more!
Carla
What a sweet and precious gift for daddy!
Continuing to pray,
Roger, Debbie & Kaeli
"Those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." Isaiah 40:31
We continue to pray for strength when you need it most and the ability to rest when you have the opportunity.
Much love
What a wonderful Easter/Pascha gift for Daddy!
You all are on our hearts and minds on this Resurrection Sunday. :D God be with you.
Angela
Dear John and Sarah,
This is an interesting post, with many blessings listed throughout.
I see few:
After a long night (John, like Sarah, is diligent)
of movement and struggle with Ellie, (This Young Lady is Tough; a good trait in a cancer fight.)
John was awarded (Your work is properly recognized by your daughter; Ephesians 6:1-2.)
one (Ellie doesn't want to spoil you.)
precious "daddy" moment (Wealth beyond dreams.)
this morning (A Holiday treat; she has timing.)
Ellie reached up and put her arms around John's neck, she pulled him close to her face, and tried to kiss him 3 little kisses, and then she mouthed the words "I love you". (Who's caring for whom here?)
If I ever got sick, It would be most gratifying to have three people like you in my corner.
How's Ethan?
Prayers, prayers and more prayers going up for all of you. In the blink of an eye this can all change for the better. I pray that it has happened even now, with this very blink.
As I sat in church today, I thought about each of you in your family and how you would enjoy a "normal" Easter Sunday like the rest of us. One trtuh in particular stood out to me and comforted as well as challenged me in my life. I also thought of the fact that it is true for your family too as you are fighting with everything you have to hold on to life. The truth is that Jesus sincerely communicated to us,
that He came to give us abundant life. Even in the midst of your immeasurable pain, God is able to provide you with abundant life. May you experience this abundant life these days as you are exhausted and facing a reality you never could have imagined.
I hesitate even sharing these words because they may seem so trite, but it struck me as I meditated on them today... that Christ can even offer the Skees abundant life in the midst of their long, tiring days filled with pain.
Standing with you,
Kristina
Because HE lives, I can face tomorrow...
Because HE lives, all fear is gone.
Beacause I know, I know...
HE HOLDS the future...
My life is worth the living..just because HE lives...
Thought and prayed for you so much this Easter...
Les
Ethan is doing very well. He misses his mommy and daddy from time to time but is loved so much by his Pappi and Bubby and Grandma Grandma and Papa. He talked to John on the phone yesterday (Easter) and wanted him to come to the Easter egg hunt in the back yard. John told him he was in NY and it was to far away to come. Ethan said why don't you get on a plane and come. He still has no concept of the distance or time between his beloved mommy, daddy, and Ellie. Beside the once in a while desire to be with them he is mostly a happy little boy. Thanks for your prayers.
Stan Skees - grandfather
STILL PRAYING FOR YOU ALL. Today epescially.
praying for you. Love, Vickie
Lift up your heads, O you gates!
And be lifted up, you everlasting doors!
And the King of glory shall come in.
Who is this King of glory?
The LORD strong and mighty,
The LORD mighty in battle.
The LORD is my strength and my shield.
-Psalms
Dear Lord please give wisdom and tender hands to the doctors who minister to Ellie's physical needs, please give renewed strength of body and spirit to John and Sarah as they support and care for their precious daughter and strength to Ellie through each new battle to get her well.
Thank you for Belinda and Loretta and each one who has given John and Sarah a much needed helping hand of support in the hospital.
How precious are those helping hands!
Continue to watch over Ethan and his Pappi and Bubby and Grandma Grandma and Papa. Thank you for the love that binds them all together - no matter the distance.
Lord, thank You for supplying "Kisses for Daddy" as a reminder that through the most difficult of times - encourgement comes in the most precious way from Your loving Hand through a precious child's embrace.
Thank you, dear Lord, for your amazing grace and strength.
Moment by moment I’m kept in His love;
Moment by moment I’ve life from above;
Looking to Jesus till glory doth shine;
Moment by moment, O Lord, I am Thine.
Never a trial that He is not there,
Never a burden that He doth not bear,
Never a sorrow that He doth not share,
Moment by moment, I’m under His care.
Never a heartache, and never a groan,
Never a teardrop and never a moan;
Never a danger but there on the throne,
Moment by moment He thinks of His own.
always praying each and every day. be strong!! love the simons family
I KNOW I ALREADY SENT A COMMENT TODAY BUT I JUST CANNOT STOP THINKING ABOUT ELLIE AND ALL OF YOU. MY HEART JUST BREAKDS FOR YOU AND YET I AM JUST SO AMAZED OF YOUR STRENGTH AND COMMITMENTTO OUT LORD JESUS CHRIST. YOU ARE TRULY A TESTIMONY OF FAITH. PEAOPLE ALWAYS WONDER HOW THEY WOULD BE IF THEY WERE IN THE SAME SITUATION AND I COULD NOT EVEN IMAGINE THAT I WOULD HAVE A 1/2 OR EVEN A 1/4 OF STRENTGH THAT YOU HAVE.I HOPE THIS DOES NOT SOUND STRANGE BUT I AM SO VERY PROUD OF YOU AND THE STRENGTH AND COMMITMENT YOU DISPLAY. YOU ARE DOING A GREAT JOB AND I JUST THINK PEOPLE NEED TO HER THAT NOW AND AGAIN. I JUST FELT THE HOLY SPIRIT TELLING ME TO TELL YOU THAT. "WELL DONE GOOD AND FAITHFUL SERVANT". ELLIE IS VERY BLESSED TO HAVE THE MOMMY AND DADDY AND FAMILY SHE HAS. GOD BLESS ALWAYS PRAYING. SIMONS FAMILY
"Keep praying and fighting!" I know you have NO IDEA who I am, but i am a friend of a firend of your Aunt, or something like that....i know an "Amyzing" young woman who i thought would LOVE to send you some words of encouragement. We call her "AMYZING" because she was diagnosed with cancer about a year and a half ago and has BEATEN IT!!! Her name is AMY.....she and her family are very religous and relied on GOD a LOT! She has a similar 'blog' set up and over 15,000 people visted her site. As a friend of her's i want to let you know you have A LOT of people praying for you and little ELLIE! By the way....she is an ADORABLE child!!! Try to keep smiling and lots of prayers are being lifted up for you and your famiy!
Praying for all of you! Aching and crying with you - because of our oneness in Jesus!
Love and hugs,
Fellow NTMers in PNG
Sending our thoughts and prayers from Michigan, and praying that the strength of God has upheld you during whatever today has held. We are praying that the peace of our Saviour is embracing you tonight as you look to Him for comofort and rest. Praying for Ellie to rest peacefully.
Love,
The Wiser Family
Michigan
Tuesday noon - Believers around the world continue to lift you in prayer. Just talked to my sister in a middle eastern country and several there are praying.
I have had such a vibrant image of the Father holding Ellie in His tender care, despite the outer circumstances of physical turmoil. He reassured me that He can bring her back from the brink of death or bring her home to Him at His choosing and for His glory.
I pray for your peace in His will.
Love, Judith in Michigan
Hi! This is the Paul Dye Family in AZ. Tho we are many miles away from all that is happening to you there....We are close in prayer and in spirit....
He will NOT give you above what you can bear....WE MUST believe that for sure...So keep on keeping on and thanks for bearing up under such trials as you have faced...
Thanks for being faithful....
We love you and are praying for that big girl Ellie and her family...
Praise God for laughter. It can be life saving when it helps relieve all the tension that builds. I continue to be awed by your openess and your faithfulness to keep all of us involved. May the Lord continue to uplift you. In His love, Marian
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