Wednesday Evening Update . . .
Late this afternoon the results of the CT reveal that there is fluid, blood, and air in the pleural space above the right lung which is compromising the upper lobe of the right lung. Ellie cannot be extubated until this is resolved. It appears to be a complicated situation because of its location and the majority of the afternoon has been spent in discussion by the doctors. Just recently (6 PM) the doctors took Sarah back and showed her the CT and discussed their plan. They want to attempt to place another drain tube through her side to the top of this lung and leave the present drain as well. They will also try to bust this area up with medication again.
The nasoduodenal (n.d.) tube has been pulled. They could not get it to seat properly in the intestines. Trials of feeding pediasure failed and Ellie ended up vomitting several times today as the pediasure settled in her stomach instead of going into the intestine as they had hoped. Ellie is running higher fevers today and they still report all cultures coming back negative. Seems we don’t really know the source of the fevers yet.
The final, major piece of information to report about is the need to return Ellie to a very sedated state until they are ready to move toward the extubation process again. The doctors are discussing the drugs and attempting to make the best decisions in this regard given Ellie’s sensitivities and paradoxical reactions to medications.
Sarah is basically staying in the ICU around the clock. The plan is for her to get breaks as often as she can. She is back-up for John at night and Belinda in the day. She is our "pro" napper morning or night. We have supplied her with some books and her companion on "watch" does primary care for Ellie and she is back-up. It is emotionally very stressful to be alone when Ellie "goes off" and for now we are working together this way for support. It is also better for Ellie, she will often sit-up or push-up and look to see her mommie on the coach in the room. Sarah also wants to be there to talk with doctors and have input in the daily decisions being made about Ellie. Thank you for your continued prayers.