For the first time since we arrived in New York, I have spent two consecutive days in the room - never having to go out except to go down the elevator to the kitchen! It has been wonderful! I don't think to this point I had even spent one whole day indoors. We have been able to sleep in and relax... watch TV... answer emails. Ellie has done well other than throwing up one time. She has been eating a little better, but it's been very slow progress. I think that she's enjoyed lying around and relaxing too. Mom has gone out to the store a couple of times and has been doing a lot of cleaning and organizing around the room.
Tomorrow radiation begins again. She has two treatments every day - Monday through Thursday. There should also be an MIBG scan and bone marrow biopsies sometime this week. I will let you know how it all goes.
John says that Ethan enjoys having him home so much. John's been giving him lots of extra huggs and kisses and spending special time with him. I miss hugging my little boy so much! The only thing that makes John being home bearable for me is that he can make Ethan happy.
Thank you all for the sweet comments and emails. We cherish having you all in our lives!