We will always remember Ellie for her love for others, her creativity, sensitivity, and delight in life! Ellie's light has spread far and wide... may it continue to shine in our hearts.

Sunday, January 06, 2008

Florida Memorial Service

I just wanted to get the specifics out about the Memorial Service.

Tuesday, January 15
11:00 a.m.

530 Dog Track Rd.
Longwood, FL 32750

For those of you familiar with Northland, the service is being held in the old sanctuary (white building), not the new larger auditorium.

We have had requests about where to make donations in Ellie's memory. We would like to provide two different locations.

The "Band of Parents" is made up of parents of children with Neuroblastoma, and is dedicated to funding treatments being researched through Memorial Sloan Kettering Hospital in New York City. We believe that this is currently the best hope for kids with Neuroblastoma, and we know a number of children who may greatly benefit from it. Donations may be made to: Band of Parents; PO Box 335; Dewittville, NY 14728, or you can visit the website online at: http://www.bandofparents.org/MakeDonation.html The website also has a gift shop, where 100% of the purchases goes to the fund. The following is a quote from that website: "The National Cancer Institute's (NCI) federal budget was $4.6 billion. Of that, breast cancer received 12%, prostate cancer received 7%, and all 12 major groups of pediatric cancers combined received less than 3% ." Also... "Cancer accounts for the greatest number of disease deaths of children in the United States and kills more children per year than cystic fibrosis, muscular dystrophy, asthma and AIDS combined."

As you know, our hearts are very much geared towards furthering research into alternative methods for treating cancer. We believe that the best hope for curing cancer lies in alternative medicine, but it appears that it will take a great deal of time before parents are allowed the freedom to pursue such treatments for their children (before it is too late to be of any effect). It is our hope that great strides will be made in this area until one day children will have the same access as adults do to gentle and humane treatment for cancer. We will have the information out to you shortly about where and how to donate (probably "C.A.M.", Complimentary Alternative Medicine) should this be a way that you choose to honor Ellie's memory.

Thank you all for your continued prayer for our family. We are enjoying this time of connecting with family and friends in Florida!


At 2:37 PM, Anonymous Anonymous said...

I pray that hundreds, perhaps thousands, will donate in memory of Ellie and that cures and treatments can be found!

Spread the word, people! :-)

God bless you, John, Sarah, Ethan and family for shining your light so brightly through this dark circumstance.

We will be praying for you especially in these coming months.

At 8:01 PM, Blogger Mandy Caley said...

We will see you there at the memorial for sweet Ellie's life.
So many of us will be there, much love comes your way.
Praying for you all.
LOVE in Jesus.

At 6:10 PM, Anonymous Anonymous said...

I just wanted to let you know that you have been in my thought's alot today. I have been praying for you continually. The other night my oldest daughter prayed first before they were going to bed and she prayed for Ellie's mom and dad and her brother. I was so amazed that even a 7 year old is praying for you all on her own. Me and My girl's feel as though you are a part of our family and yet we have never met. I just wanted to drop a line to let you know that we love you guys and are praying for your family. Love Allison from Iowa.

At 8:28 PM, Blogger Kristy said...

Since discovering your blog and reading Ellie's story, I have thought about you, John, and Ethan almost non-stop.

I remember reading in one of your posts about your hopes for Ellie's life - how even if it was short, you would consider it full if it brought glory to God. I thought that was such a powerful thing to say, especially in the midst of pain and apprehension. Your message resounds: The measure of a person's life is not in the number of years we are here, but in the number of people we reach in His name. To know, and believe, and REFLECT that message to others is SUCH a powerful testimony.

Ellie's life was full. Even though I haven't had the priviledge of knowing you and your family personally, through your testimonies here, I feel like I know you. I really do. And I can say with conviction, Ellie's life brought glory to God. Her strength, her attitude, her hope, her faith - the example she set as an eight year old is mature beyond her years. ESPECIALLY in the face of pain and fear.

That is the sort of strength and peace that only comes from God. From knowing Him, from trusting in His will for your life, and from amazing parents who reaffirm and mirror His love back to you everyday.

I'm praying for you throughout the day. May you feel God's peace, despite the hardship of the upcoming days.

In His Name,

At 8:54 PM, Blogger Dylan Hartung said...

Hi guys, how you doing? I miss you heaps.I couldn't find an email address to email you privately, I know I had it somewhere but I can't find it, anyway I wanted to invite you to be added to a new page I made on Dylan's website. You can view it here at this link below and I wrote about it in Dylan's journal at www.dylanhartung.net
Email me and let me know if I can add your website to the link, you were a well known and very loved resident at RMDH.


At 11:21 PM, Anonymous Anonymous said...

Thinking of you daily and praying for your family. Love, Sheri

At 2:28 AM, Anonymous Anonymous said...

Dear Sarah, John and Ethan,
Praying for you and extended family. We'll pray for more to be done in the battle for children's rights as you expressed so well.
Prayed for you today,

At 7:38 AM, Anonymous Anonymous said...

Continuing to pray for all of you.Hope you are enjoying your time with family and friends . May God continue to comfort you and give you peace. love simons family


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