We will always remember Ellie for her love for others, her creativity, sensitivity, and delight in life! Ellie's light has spread far and wide... may it continue to shine in our hearts.

Tuesday, March 27, 2007

Ellie's Fever

It is now 11:00 a.m. and Ellie's fever has been up above 103 for over 15 hours. It has been horrible to watch, and in the midst of it all she threw up three different forms of Tylenol. Before she threw up the third one this morning, and still with a fever over 103, we had to go downstairs for radiation. I wanted to cry. But Ellie was still brave and went through it. Once we came back to the room she threw up. So she was given a medicine to help her stomach and she had to take the Tylenol for a FOURTH time! This time the drug put her to sleep before she could throw up, so she is in a very deep sleep at the moment. The nurse just took her temperature and it was 101.8 - I never thought those numbers would look so good! The nurse also said that the blood culture is growing something - that she has an infection in her Broviac line. That sounds awful, but it is treatable with antibiotics...the same ones she was put on last night. And so, she is on three antiobiotics, one anti-viral, three anti-nausea meds, Tylenol, and something to make her white count rise... and she may be getting platelets today. Oh yes, then there's the afternoon radiation treatment. I know... my head's still spinning too. This, combined with loss of sleep has me feeling dazed and slightly dis-oriented, but I'll live. Mom stayed the night here as well, and she has already been out and about running errands and going back to the house for more stuff. I think that we're finally settling in for a quiet afternoon. I keep looking over at Ellie and she has lost that scary dusky red color on her head and face - it's kind of sad when it's a relief to see her pale. I'm just so proud of her. She has obediently taken and re-taken the Tylenol and everytime I tell her how well she's doing or tell her how sorry I am that she's sick, she says "thank you" in the smallest voice. Every single time - "thank you"!

It has taken me hours just to write the above - in between all of the mayhem. Her fever went up again, and is still just hovering in that 102-103 range. I just don't know what's goig to happen. With line infections, there can be a number of complications. One of the ways of handling this would be to take her Broviac out. Please pray that whatever is best for Ellie would happen. Thank you so much.


At 2:54 PM, Blogger tricia said...

Oh Sarah, I'm so sorry. I've been praying for you and Ellie throughout the day. Hugs, Tricia

At 5:37 PM, Anonymous Jill Heins said...

Please know we hold you in our prayers to rejoice in the good and to ask for peace and comfort in the most difficult. He is there! Our God is Good! He will be with you all and I just pray you will all feel His arms of Love around you!
Love and God's blessings,

At 7:22 PM, Anonymous Kristina said...

Know that I am praying tonight. I am so sorry.

At 7:22 PM, Anonymous Amy said...

I haven't left a comment before, I'm sorry about that, but I have been praying for your family from the other side of the world. I have been very encouraged by your trust in God and pray that you will continue to trust in His goodness no matter what happens.

At 7:48 PM, Blogger ~T said...

Praying for Ellie's strength and you and your mom as well right now.

Terri, Tricia's friend in Texas

At 8:38 PM, Blogger Mrs said...

Praying and aching for you, Sarah! The Lord is our Strength . . . .


At 9:20 PM, Anonymous Anonymous said...

Sorry that you and Ellie are going through another rough patch. I haven't checked the blog since early this morning so just found out tonight what was going on. We are praying for you and that Ellie would respond to the medication and that the infection would clear up right away. Love you so much, Vickie

At 1:55 PM, Anonymous gina Schoenherr said...

Dear Ellie
Ever since Macon told us about you we have been praying for you and our grandchildren have been praying too. I give you mom and dad and your whole family a big hug and especially you, dear one. The Lord will not allow you out of my mind....I love you in the Lord I will continue to lift you up
GIna and Jeff S

At 5:16 PM, Anonymous Anonymous said...

I wanted to write to let you know my heart goes out to Ellie and her family. It is not easy to watch our little ones go through so much pain.
Hugs, Nichole


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