We will always remember Ellie for her love for others, her creativity, sensitivity, and delight in life! Ellie's light has spread far and wide... may it continue to shine in our hearts.

Friday, April 20, 2007

Prayer Request

I know I just posted an update today, but I have one more thing to add...

Today we have had a significant first since Ellie's diagnosis - facing the death of another child amongst our connections. A little girl that we met in the PICU - our little roommate Nicole (age 3) - has been found to have disease in her brain (not neuroblastoma, but another devastating childhood cancer) that is so extensive, she has been given the hope of only two weeks more to live. Our hearts are breaking for her family tonight. We don't know them well, but we sat on opposite sides of a curtain for weeks passing time while we waited next to our unconscious daughters and later listening to each other's daughters being extubated and intubated and re-extubated... Nicole's little tiny Italian grandmother and I took turns hugging each other while standing in the hallway waiting to be allowed back into the room during some of the intubations. This afternoon when Nicole's mom, Kim told me the news, all I could do was say "I'm so sorry" and hold her while she cried. I just wanted to bring this sad piece of news to your attention and ask you to please pray for this family - parents, siblings, grandparents and I'm sure many other family and friends. Our hearts are heavy as we have only a small taste of the grief they are experiencing tonight. I am so very thankful for you all and will tell Kim tomorrow that there are many many people who don't know her but are nevertheless lifting her family up to God in these agonizing weeks ahead. Thank you so very much!

18 Comments:

At 9:02 PM, Anonymous oneofhisfriends said...

Please tell them that we are asking the God of all comfort to heal and to help.

Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; Who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God. 2 Corinthians 1:3-4

Agapé

 
At 10:48 PM, Anonymous Anonymous said...

Please know that you are all being continually lifted up in prayer for total healing and rejuvenation and comfort.

My prayer warrior friends at work saw Andy's message and ask about you every day.

May God Bless You and Keep You In the Palm of His Hand,

In Jesus' Name,
Debbi Corley
Dallas, Texas

 
At 11:44 PM, Anonymous T. Davis said...

Hello from International Community School - Winter Park:
I feel so sad for Nicole. Our class at school has been praying for Ellie and another young girl named Dakota, and now we will add Nicole and her family to our prayer time. I have 2 adult daughters and a 2 month old granddaughter, so I have a special soft spot for little girls. As the classroom teacher, I am grateful that I can report back to the class that Ellie is doing well. I was encouraged to see her actually WALKING!! (Praise God!!)

 
At 12:19 AM, Blogger Phyllis said...

Yes, please tell them that we're praying. Do they know the Lord?

 
At 5:41 AM, Anonymous Anonymous said...

Sarah
Thank you for sharing this request with us. We will be praying for this family and for you as the Lord may use you to encourage them somehow. Praying for you!
Love, Karyn K

 
At 5:52 AM, Anonymous leroyruth said...

We will certainly be praying for Nicole, and for her family.
LeRoy & Ruth

 
At 6:07 AM, Blogger HopiQ said...

Let Nicole's family know we are praying for them, too. You all are in our hearts and prayers.

 
At 8:07 AM, Anonymous Anonymous said...

WE are praying for Nicole and her family today. Crying with them even though we don't know them.
Continuing to pray for you, John, Ellie and Ethan. Love you, Vickie

 
At 10:04 AM, Blogger Penny-Sue said...

We will be praying through your nights. You all are on our hearts and brought before the Father many times a day.

Continue "Leaning on the everlasting arms"

Love,
Penny-Sue

 
At 12:57 PM, Anonymous Anonymous said...

We are praying for Ellie and this little girl Nicole.
Our third child was stillborn ten days before he was due. The Lord "lived" for us during those bittersweet days. The Lord will give this family whatever they need as He comforts them in HIS perfect way! God is so good and HIS plan is always perfect even though it is sometimes hard.
Thank you for your honest,godly example that you set. You are an inspiration knowing all that you are going through. May God bless you and your family for being so faithful to Him during difficult days! With Heartfelt prayers~ Nicki

 
At 2:29 PM, Blogger Mandy Caley said...

Praying lots. Andrew too.
Love to you all from us Caleys

 
At 5:38 PM, Blogger Julie said...

All of us at Suber Road Baptist will be praying. Please tell Kim that she and her family are being brought before the throne of God.

 
At 5:47 PM, Blogger Mandy Caley said...

My login has not been working BUT we pray every day several times and are always encouraged by you on the blog !!
Andrew says hi to Ellie.
Love and God bless Mandy and co

 
At 8:12 PM, Anonymous Kristina said...

Praying for this family tonight.
-Kristina

 
At 9:03 PM, Anonymous Anonymous said...

Praying for the family as they face these upcoming days...and praying as you will undoubtedly be given many chances to reach out to them. Asking God to give you the words to say and to use you in their lives at this time. Les

 
At 10:47 PM, Anonymous Anonymous said...

Hi terry's sister again ,
I will say a prayer in church for them tomorrow 4/22 sunday.God will take care of them and give them strength.
And also for Ellie and your family .God will give all of you strength.
God bless ELLIE and YOUR Family.
God bless Nicole and her family.
chrs

 
At 9:49 PM, Anonymous Anonymous said...

Dear John and Sara,
A few days ago I was looking at a missionary web site and I noticed at the bottom it said please pray for Ellie Skees. Recognizing the name, I clicked on it and first found out about what has happened to your family and most importantly, little Ellie. I found the blog site and for the past 2 days have been glued to the computer reading all the entries from way back in September. I am so sorry for what has happened. I couldn't imagine living through what you have for the past 7 months. I told our daughter Kellie about it (not sure if you remember her from 2 years ago when we first met you)and she got tears in her eyes. We have prayed for her and your family and will continue in the days ahead. Seems like you have a great support system there with John's family and your mom and stepdad as well. I will look forward to the updates so we know whats going on.

Love, Carrie Dunham and family ( Noelle Brown's sister)

 
At 6:53 AM, Anonymous Anonymous said...

please tell ellie we are so proud of her and the progress she is making.hannah has been praying for her too. we will defintley pray for nicole and her entire family. our hearts go out to them. keeping you all in prayer everyday. love simons family

 

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