We will always remember Ellie for her love for others, her creativity, sensitivity, and delight in life! Ellie's light has spread far and wide... may it continue to shine in our hearts.

Monday, November 26, 2007

Checking in...

Hi all. I just wanted to let you know that there is still nothing new to report. Things remain pretty much the same as in my last update. If anything, Ellie probably just continues to have less energy with each passing day, but it's not dramatic. The pain remains under control with the two mildest drugs that we can give. We have an arsenal of other drugs to use should the need arise, but so far homeopathy has helped keep Ellie very comfortable, mentally alert and happy. I'll try to get more interesting details soon, but I'm tired tonight. We are hanging in there as well as we can... some days are better than others... Thanks so much for your support and love!

23 Comments:

At 7:59 PM, Blogger JAMs Wife said...

Thank you for sharing your story with us. You show amazing stength and grace.

 
At 8:12 PM, Anonymous Jen Johnson said...

Sarah,
I was thinking of you while I was doing dishes tonight. I have been knocked down today with what I am sure is going to turn into a cold. Logging on just now and being able to read an update just completely lifted my spirits. I had a plan.....if there was no update I was going to call Loretta! We continue to think about you all, every day. Bailey talks about Ellie non-stop. They have created huge (posterboard) cards for Ellie. They are actually too big to stuff in the mailbox so they are set aside for now. I knew I was bound to catch a cold sooner or later. Hopefully I am the only one who gets it. We miss you guys. Hope you all stay warm inside tonight as they are predicting up to 8 inches of snow here in the next 24 hours.
Be safe and know that you are loved!
Jen

 
At 12:51 AM, Blogger c.g. said...

There are days so dark that I seek in vain
For the face of my Friend divine;
But though darkness hide, He is there to guide
By the touch of His hand on mine.

Oh, the touch of His hand on mine,
Oh, the touch of His hand on mine,
There is grace and power, in the trying hour,
In the touch of His hand on mine.

"Our soul waits for the Lord;
He is our help and our shield."
Psalm 33:20

our love and prayers.

 
At 5:46 AM, Blogger LindaSueBuhl said...

You continue to be in our prayers - grateful for any update. I thought of Ellie when a TV show did a story about the store and a new American Girl doll - and what a happy time you described in NYC for Ellie. We are here for the journey with you - bless you Sarah.

 
At 5:55 AM, Blogger Becky K. said...

I will not stop praying and checking for updates.
Your post has a sense of exhaustion... and for very good reason. You have been through so much with a move and the concern and medical treatments...Our Father knows and loves you and will not let you fall. May HE wrap you in HIS arms and hold you tight in these impossible days. May HE lend you HIS strength to make it through this valley.
The caregiver is often more effected than the patient. Waiting and watching is exhausting. Please make sure that you get as much rest as you feel that you can.
Love,
Becky K.

 
At 7:16 AM, Anonymous Anonymous said...

We love you all.

Peter and family from Canada

 
At 9:12 AM, Anonymous Jill Heins said...

Just to let you all know, our prayer are constantly surrounding all of you.
Love and blessings,
Jill

 
At 9:38 AM, Anonymous Andrea said...

Hi, Ive been following your blog from the beginning and just wanted to write a note to tell you that I am continually lifting Ellie and your family up to God in prayer that He will continue to give you peace and comfort during these difficult times.

Praying from Peru,
Andrea Minix (Friend of Ruth Kime)

 
At 11:07 AM, Blogger S.u.s.a.n said...

I don't even know your family and don't even recall how I stumbled upon your blog but I find myself drawn to it to see how Ellie is doing. I'm still hoping you get your miracle.

I'm just a stranger from the east coast who thinks about and prays for Ellie and your family.

 
At 4:22 PM, Anonymous Anonymous said...

Dear Sarah,

I am just so sad to hear what is going on. I am still praying for a miracle and that you would have peace. I hope that you find a balance between hope and reality....a sense I think only God can provide. I have held off sharing this with you, but feel now it is important. I know of a women who has a very similar cancer as your sweet Ellie. Last Christmas she fell into a coma, kidneys shut down...the end. Today she is still alive, no one knows why, the cancer isn't gone. She still is on pain meds and has really bad days. But, she lives. God works in all kinds of mysterious ways. I just wanted you to know of her.

Gina in MT

 
At 8:14 PM, Anonymous Anonymous said...

Sarah,
Is there an address where we could send Christmas ornaments to Ellie? I remember how much she enjoyed them last year. We could start sending them now. It's always nice to get surprises in the mail. Thank you for your updates. We continue to pray for you all!

Kristen Linduff (Circle Community Church)

 
At 12:53 AM, Blogger c.g. said...

"Unless the Lord had been my help,
My soul would soon have settled in silence.
If I say, "My foot slips,"
Your mercy, O Lord, will hold me up.
In the multitude of my anxieties within me,
Your comforts delight my soul."

Psalm 94:17-19

much love.

 
At 7:21 AM, Anonymous Anonymous said...

we are continually praying for you all each and everyday day. thanks for updating us. love simons family

 
At 12:17 PM, Anonymous Anonymous said...

God is there when the sparrow falls
And the wintry blast is blowing.
God is there when the sky is grey
And your bitter tears are flowing.

God is there when your strength is spent
And your numbered locks are graying.
He is there when your heart is numb
And you cannot go on praying.

He does not stay the sparrow's fall
Nor stop the wind from blowing.
He does not send the clouds away
Nor stem your tears from flowing.

But, better still, He come Himself
When all around is failing.
His own divine companionship
The Father's heart unveiling.
~Erin S Horn

We are praying for you!

 
At 5:01 PM, Blogger Renee said...

you and your family are loved! praying for you all.
renee

 
At 5:07 PM, Blogger jeff said...

You and your husband are doing remarkably. Hang in there.

 
At 1:53 PM, Anonymous Anonymous said...

Dear Sarah,
I am glad that God gives you the strenght each and every day to write what is on your heart. You are helping so many people by sharing your life with us. You know this is a God thing that God is with you all of the way, when you can be able to let go...and beg others to let go with you..GOD BLESS you and your family Sooo much. It has to be one of the hardest things to do....We are so lucky to have a God that we can lean on in times of need. Like you said He gives you a peace...it still hurts...but there is that peace of understanding that only He can give us!! Always in our prayers God Bless you's always!! In a way you have become a part of our family~~
The Mcleod family

 
At 8:11 PM, Anonymous Anonymous said...

We continue to pray for you.
Love,
Kristina and Alexa

 
At 5:03 PM, Blogger Whatleys' World said...

Praying for you from Indonesia!!!

 
At 7:43 PM, Blogger Carleen Newton said...

Sarah and John:
We are back in the USA where we can check your blog more faithfully. It is amazing to see the grace and strength God has given you over the long haul and over these past 6 weeks of our absence. Our grandchildren are praying for Ellie and as a family we feel deeply your pain. Our Father is with you tonight as I write... He is the greatest answer to your needs. We rejoice that you know Him so well.
Carleen Newton and family

 
At 8:35 AM, Anonymous Anonymous said...

Sarah & John,
You are amazing to us in your love and care for your family. We want you to know that your love of Jesus shines through the Blog as you share with us. We check daily and pray daily for you and the rest of your family and especially Ellie.
God's richest blessings on you.
Much love.

 
At 6:49 AM, Blogger jeni said...

hmmmm....we were getting ready to leave the house for a little while, and i said, "hold on you guys, i have to check on ellie."

noe of us 'know' ellie! but we love her:))))

jeni

 
At 6:47 PM, Blogger Kate said...

I don't have any eloquent words tonite to respond to your posts about your precious Ellie...but I just wanted to say that we are praying that God's peace and grace and comfort are so real to you that you could reach out, grab it and curl up with it (and Him). In the midst of this dark and sad time in your lives, choose to rest in the One who created and knows Ellie through and through and loves her more than anyone. We send you much love and prayers from Maryland (PNG friends of Chad and Janeen)!

Love,
Kari Schmidt

 

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