Back In NY

Hi everyone! We are back at the Ronald McDonald House again. Monday was a full (but fun) day of travel... details and pictures to come... and Tuesday was a full day at the hospital. We are still trying to settle back in so it's been very busy.

We arrived at the hospital first thing in the morning so that Ellie could get an IV, since she no longer has a central line. So far Ellie has had CT scans (she had to drink some contrast before the scans) and later received the radioactive injection for the next day's MIBG scan. In the afternoon Ellie was given her bi-monthly medication to keep her from getting a specific type of pneumonia. Unfortunately, this time Ellie reacted to the medication and was nauseous and itchy. After a dose of benedryl, she fell asleep until the antibiotic was finished. 11 hours after leaving the house, we returned. Long day...

It is now very early Wednesday morning. After all too few hours of sleep we will go back to the hospital for more tests. The MIBG scan is first, followed by bone marrow biopsies - four of them - two in the back pelvic bones and two in the front. Hopefully we will be home not too much past lunch time for some rest. Thankfully Ellie usually recovers quite quickly from the bone marrows. She will be the most sore tomorrow, and then it gets much better each following day. We are hoping that Thursday and Friday as well as the weekend will be not terribly busy. We shall see...

I need to get to bed, but just wanted to get out a quick update. I'll provide more details and pictures later. Thanks again for all of the love and prayers. We need them so much!