Going Home...at Long Last!
Today we received the welcome news that Ellie will be discharged from the hospital tonight! We're so excited to be finally taking her home. She has made great progress in physical therapy - today she played hopscotch even and practiced walking stairs! She still has to continue eating and drinking and taking some medication by mouth. Her temporary central line will be taken out today which means she gets to go home for the first time in 7 months with no tubes in her body! She will be able to take long full baths and play unencumbered...
Our plan - only as of yesterday - is now to try to go home to Florida for a week! We are trying to get a flight through the Corporate Angel Network - hopefully for Friday. We can't wait to see Ethan again... it's been too long.
Thank you all for your constant prayers and support during the long hard past month. We wouldn't have wanted to go through that without you all. We will still be posting some things - hopefully lots of pictures - over the next couple of weeks, but I don't think that I will be posting every day. (I guess I haven't really been doing that anyway of late.) Please know that right now if there is nothing new, it's probably a good thing. We will certainly let you know if anything major happens and we will try to keep some happy fun things posted along the way!
My next update will be from somewhere other than that hospital. :-)
posted @ 12:26 PM
26 Comments:
Praise God for whom all blessings flow. May His love continue to give you the grace for each moment. Love you so much
Nick and Celena
yeah! Great News!
I bet you will be so happy to see all of the familiar things of home. (and your own bed)
-love
Derek, Roni, and Tyler
Yay! I will be praying for flights to work out well for you. So glad you'll be able to see Ethan for a little while!
Yay! That is great news!! Will continue to pray for y'all during the coming days and weeks.
xpDear John and Sarah,
Very glad, with you, for all of these good reports. Looking forward to what lies ahead.
Thou compassest my path and my lying down, and art acquainted with all my ways.
For there is not a word in my tongue, but, lo, O LORD, thou knowest it altogether.
Thou hast beset me behind and before, and laid thine hand upon me.
Such knowledge is too wonderful for me; it is high, I cannot attain unto it.
(Psalm 139:3-6)
Agapé
Wow! How absolutely amazing and wonderful. God's purposes will prevail even when it seems so difficult and bleak. Have a precious time as a family. Janet
Praise the Lord! Can't wait to not hear from you! ;-D
Blessings in Him,
JoAnna
Blessings, Sarah! We pray you have a wonderful time at home!
Carla
PTL!
So excited to know you may have a chance to get warm again. We will pray that all of the details for the journey fall into place.
In His Grip of Grace,
Lori Z
As I think and pray for you Psalm 40 comes to mind. "He lifted me out of the slimy pit, out of the mud and mire; He set my feet on a rock and gave me a firm place to stand. He put a new song in my mouth, a hymn of praise to our God. Many will see and fear and put their trust in the Lord." You all have been to a slimy muddy place, but you're on the rock - always have been but it feels more firm again. As Ellie processes her experience I'm praying for a new song, because I already know that many have seen the Lord at work: we pray they will trust in Him as well. Janet
God is SO Good!
I am so happy for all of you! Have fun with Ethan!!
Love & Continued prayers!
Jill
I'm still doing the happy dance! Can't wait to see you!
Sarah,
Great News! Praise God! This is a total answer to prayer! I was feeling so overwhelmed for you and I just gave it to God and asked Him to provide a way for you to get home (Florida) for even a few days. This will be a really good time for each of you!
Tami B.
Hallelujah! Hope the long-awaited bath is everything Ellie hopes it will be!
Mollie, Doylestown, PA
I'm so happy that you guys will get to be at home with Ethan!! I will be praying that all of the little details work out! We love you and are so thankful for the time we got to spend with you!!!
heather and nick
I am praying today that you'll find a quick trip home. Wow, it is amazing that God has done all of this in such a short period of time!!! Enjoy your baths, Ellie.
Have a wonderful day and enjoy every moment :)
-Kristina
To God Be The Glory! Enjoy your home time and Ethan. We continue to pray in SC.
PRAISE GOD !!! THAT IS SO WONDERFUL THAT ELLIE CAN GO HOME. WE ARE SO HAPPY FOR YOU GUYS. ETHAN IS GOING TO BE SO GLAD TO SEE YOU. HAVE A WONDERFULTIME AND ENJOY EVERY MOMENT. KEEPING YOU IN PRAYERS ALWAYS. LOVE SIMONS FAMILY
What wonderful news! We'll pray that you can get the flights you need and that you will have precious time with Ethan. How is he coping with all of this? He's in our prayers as well, that God will guard his heart and mind from any insecurities. I'm so excited for you all to be together again! Enjoy!
Beth Anne
Awesome you guys! What wonderful news! You have a real little trooper there. We are praying...
Dave Field
As for God, his way is perfect: the word of the LORD is tried: he is a buckler to all those that trust in him.
For who is God save the LORD? or who is a rock save our God?
It is God that girdeth me with strength, and maketh my way perfect.
He maketh my feet like hinds'feet , and setteth me upon my high places. (Psalm 18:30-33)
Just the same, it might be a good idea to keep Ellie away from Kryptonite. We wouldn't want to tempt the Lord.
Joyfully
Wonderful news!
So very thankful that you all get this family time together.
Pray all the details get worked out and that this is a time for renewing your strength with lots of hugs, splashes and good family times.
Praying for a good week and some very happy days for all of you.
Love the Kime Family
That's great you get to see your Ethan. I pray the travel arrangements will work out. God bless.
Ohhhhh, we are SOOOO very excited!! Small things are so huge right now aren't they. We will continue to pray for God's loving hand to be on you all as you face the daily challenges. Maybe in one of your next postings, you can let us know if there is anything that we can do monetarily to donate to Ellie's fund for medical and soon to be travel bills. We don't know you but feel like such a part of your family.
Much love
Dave, Dana, David and Gracie
WOW!! Ellie reminds me so much of my Jillian. What a fighter!! Jillian is 4yo and fighting cancer here in AZ. Is there a possibility that Jillian and I could send you guys a care package?
Katie
www.teambettendorf.com
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