I have a website for you that has two of the children I mentioned. Our friend Melissa started this to keep track of the children that many of us know from the Ronald McDonald House in NY. She has been there with her son Dylan (who has NB) from Australia for at least two years. Melissa got permission from the parents to list their websites. "Austin" is the 6 year old boy and "Courtney" is the 6 year old girl I told you about. There are many other children featured on that page if you feel like checking them out. We know a number of them (including Austin and Courtney), and we also know a few in the "Angels in Our Hearts" catagory. I don't have a website for you for the 9 year old boy. I don't know that family personally and don't feel comfortable contacting them during this time. I met Austin and his mom on our last trip to NY. We shared a kitchen and lived across the hall from them. They are a sweet family who have been fighting for a long time. I have known Courtney's family longer. They would come and go for treatments while we were living in NY, and Ellie was able to spend a little time playing in Courtney's room once. Her mom has given me so much encouragement and understanding over the months. They too, have been fighting NB for a very long time. Thank you so much for including them in your prayers! This is so hard. The longer we go from Ellie's diagnosis, the more children we watch die. It will continue to be this way.
This is the address for Melissa's site: