We will always remember Ellie for her love for others, her creativity, sensitivity, and delight in life! Ellie's light has spread far and wide... may it continue to shine in our hearts.

Sunday, April 01, 2007

Extubation Attempted

It's one in the morning and this is Loretta attempting to recap the information from this long day (now yesterday) for Sarah. She has been in the PICU all day with Ellie and is with Melanie there tonight. She has no access to the computer.

It was a complex and turbulunt day for all. The day began with the plan to extubate Ellie and then the decision fluxuated throughout the day with low blood pressures, deep sedations, and elevated temperatures. In the morning, we had fluid in one lung and the plan was to work to help Ellie be free of this before she was extubated. It was touch and go most of the day. Finally it was determined that her lungs were clear and the breathing tube could be removed. This happened around 7:30 PM, and for an hour family and medical staff talked and worked with Ellie to help clear her air ways – to cough and adjust to the tube being gone. Ellie worked like a champion – cooperating with multiple requests. In one short hour, after the application of the CPAP mask, the effort failed and Ellie had to be reintubated. We are moving into the night working to balance her blood pressures again (now they are high) and investigating a rising fever.

Sarah & John once again faced incredible challenges and decisions and worked to gird themselves up as they watched Ellie go through all this. Sarah states that the grace of God once again took over for them in so many ways. She said that in all the hard areas there was grace all the way to the end of the day – even for John whose day exceeded 25 hours. Again, she says we can feel all the prays that are keeping us going beyond what we could have imagined. So much so, that today was like yesterday in this regard, except even more so.

12 Comments:

At 11:56 PM, Anonymous Anonymous said...

We are still praying for little Ellie and for her family. She is never far from our thoughts.

 
At 12:22 AM, Anonymous Anonymous said...

Still praying for you here in PNG! We asked everyone at Lapilo to pray for Ellie (about 70 families)and all of you and Chad and Janeene (since they are so far away). So thankful that you are leaning heavily on God. You are a testimony and encouragement to us all. Keep trusting!

Love,
Arlita Burnham

 
At 5:23 AM, Blogger mcovington1 said...

Sarah and John: Lifting you all up before the compassionate throne of grace. We are especially praying that Ellie will be comfortable and content somehow! Phil 4:13 and 4:19.
Mollie, Doylestown PA

 
At 6:00 AM, Anonymous Anonymous said...

Sarah -
We love you and we're praying for you. You say the word and we will be there to sit with you or help in any way we can. I have carried Ellie in my heart all the more since seeing her on Thursday. She is so precious!! I've been praying constantly!

Lord, I have heard of your fame; I stand in awe of your deeds, O Lord. Renew them in our day! In our time, make them known! (Hab.3:2)

We will continue to pray! We love you dearly!...please call for anything at all - or have someone else call us for you :-). We're here for you! Carla

 
At 6:33 AM, Anonymous Anonymous said...

Just don't have the words to try and express how we're feeling 'watching' you go through all of this...we are just praying so much for you. Les

 
At 6:54 AM, Blogger nmartens said...

I continue to pray for Ellie. Tonight I will ask my Bible study group to especially pray for Ellie this week. Ellie's faith says so much! She is a strong warrior.

We are also praying for the family that is there is NYC taking care of everything. And Ethan, too!

God Bless You All!

Nancy Martens

 
At 7:12 AM, Anonymous Anonymous said...

I am lifting you all up in prayer.

 
At 7:18 AM, Blogger HopiQ said...

We are continuing to pray for you and your precious Ellie.

 
At 7:20 AM, Anonymous Anonymous said...

Dear John and Sarah,

Ellie has been on my heart and we have been praying for her as well your family and the medical team. You are truly an example and encouragement. God bless you as you walk through this valley!

Love,
The Gustafson Family
Dan, Theresa, Noah and Gloria

 
At 12:01 PM, Anonymous Anonymous said...

We are thinking of you all constantly and hoping for the best.
Love, Derek, Roni, and Tyler

 
At 1:17 AM, Blogger c.g. said...

Now we can come fearlessly right into God's presence.
Ephesians 3:12, TLV

"Christ meets you outside the throne room, takes you by the hand, and walks you into the presence of God. Upon entrance we find grace, mercy.."

As I read your words, Sarah - the heartbreaking, faith-filled words of a mother’s amazing love and the words of those who are holding you in the arms of prayer - I thought of Max Lucado’s beautiful words on prayer above.

Holding you in the arms of prayer with so many others who, though, separated by great distances here on earth know no such separation in the Throne Room.

Dear Lord: Hear the cry of my heart for Ellie and her family. Give strength when the battle wearies them and the touch of your quiet assuring Holy Presence through it all.


And Jesus said,
"Come to the water,
Stand by My side,
I know you are thirsty
you won't be denied;
I felt every tear drop
When in darkness you cried,
And I strove to remind you
that for those tears I died."

So much love to you all.

 
At 9:09 PM, Anonymous B Logan said...

I pray several times a day for Ellie you and John plus extended family. We have also placed Elliesd on the church Prayer list and have verbally asked for prayer from adult classes. Stay strong. God Cares B Logan Cadillac Michigan

 

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