We will always remember Ellie for her love for others, her creativity, sensitivity, and delight in life! Ellie's light has spread far and wide... may it continue to shine in our hearts.

Tuesday, April 03, 2007

We Hope for Better . . .

The long night ran over into a long morning. Ellie continued to experience hallucinations on and off during the night until around 6 AM. We hope and pray they will not start again with the onset of evening.

Meds were stopped at 8:00 this morning. They did trials on the ventilator to see if Ellie could breathe on her own and she did well. The breathing tube was removed around 12:30 this afternoon. It has been non-stop since that time trying to keep everything balanced that is needed for Ellie to remain free of another intubation experience. The adjustments have been difficult for Ellie, and once again she works with all her might to hold her own. Her voice is hoarse and raspy and difficult to use – the doctors say that the intubation tube irritated the vocal cords and there is quit a bit of inflammation. So Sarah is still doing the dance of language translation and Ellie the dance of expression without words.

There is a machine called BiPAP (Bilevel Positive Airway Pressure) that gives every breath that Ellie takes an extra push. Unfortuantley, it has to be strapped securely to Ellie’s head and face creating a seal over her mouth and nose. This is not comfortable for our little “warrior girl” – but she is hanging in there believing us that this too will end. There has been nausea and some vomiting throughout the afternoon, compounding the situation. They do frequent chest x-rays to monitor her lungs and an air pocket was found in the right pleural cavity. This had to be removed (decompressed) through the drain tube in her chest and now will continue to be monitored. It is very hard to maintain a tight seal to an open wound in the chest area – an air leak is always a risk.

Many more critical signs and information are being monitored non-stop to insure that Ellie is successful in breathing for herself. There are numerous procedures to be done by Ellie with the the medical staff and her loving support team in order to maintain all the necessary balances. Her doctor came in early this evening and stated that the first 12 to 24 hours are the most critical for keeping extubation. She said if we get through the night, that is good, and each hour the further out we go, that is BETTER.

I (Loretta) was able to grab moments with Sarah throughout the day to share some of the enouragement and scriptures being sent for Ellie and her family. She again says thank you for your loving support and continued prayers.

22 Comments:

At 8:14 PM, Anonymous Janet said...

Continuing to pray and can't help but think of this Amy Grant song for you.
"I am waiting/With a silent prayer/I am frightened/By the load I bear/In a world as cold as stone/Must I walk this path alone?/Be with me now/Be with me now/ Breath of Heaven/Hold me together/Be forever near me/Breath of heaven/Breath of Heaven/Lighten my darkness/Pour over me, Your holiness/For You are holy, Breath of Heaven/Do you wonder as You watch my face/If a wiser one should have had my place/But I offer all I am/For the mercy of your plan/Help me be strong/Help me be strong"
Joined in prayer, Janet

 
At 8:41 PM, Blogger tricia said...

THank you for your updaates Loretta. Thank you too for being there for John, Sarah and Ellie. I know how much you comfort and encourage them.

 
At 10:16 PM, Blogger BreezieGirl said...

Still praying in California...

 
At 10:23 PM, Blogger c.g. said...

"From the end of the earth I will cry to You, when my heart is overwhelmed; lead me to the Rock that is higher than I." Psalm 61:1

Wrapping you tight in the arms of prayer.

 
At 10:34 PM, Anonymous Anonymous said...

Thank you for keeping us up to date. We are hoping for the best and thinking about you guys all the time. I wish I had words to encourage you, to strengthen your resolve, or just that will let you know how deeply we care and love you. Know that our thoughts are always there even in your darkest hour; and celebrating with you all of the triumphs great and small.
Derek, Roni, and Tyler

 
At 1:38 AM, Blogger Penny-Sue said...

We have been in a computer blackout for the past 2 weeks. We have continued to keep you all in our prayers, and you all have come to mind so much in that time. Each time we have prayed, we have wondered what must be going on.... now we know.

PLease know that you are being upheld by the prayers of MANY here in China.

We may be far away, but we are right there at the foot of the Savior, interceeding for you and your precious little ones.

As I read your posts, I can't help but think of Psalm 91!
Vs. 2 I will say of the Lord, he is my refuge and my fortress: my God: in Him will I trust.
Vs. 11 for He shall give His angels charge over thee, to keep thee in all thy ways.

Still praying in China!
Penny-Sue

 
At 3:40 AM, Blogger Robyn said...

Thank you for the update, continuing to pray....

 
At 5:27 AM, Anonymous Anonymous said...

I carry you with me today, Sarah! We won't stop praying and asking God to be BIG in your lives this very day! We love you!
Carla
Thank you so much for the updates, Loretta!

 
At 6:09 AM, Anonymous Anonymous said...

Dear John and Sarah,

Our hearts are very heavy with you and for you. We are praying, praying, praying. God IS FAITHFUL! "HE will carry the lambs in His arms, holding them close to His heart. He will gently lead the mother sheep with their young." Isa. 40:11

Our love, Keith and Wilma

 
At 6:35 AM, Blogger mcovington1 said...

Continuing to pray for all of you. I have such a strong sensation when I pray for Ellie that she is being held so comfortingly in the arms of Jesus. Trusting God for continuing progress! Thanks to all for the updates.
Mollie, Doylestown PA

 
At 6:55 AM, Anonymous Kristina said...

I am think of you and praying all day....
-Kristina

 
At 6:56 AM, Anonymous Anonymous said...

Loretta thanks for the updates.
Sarah,John and Ellie,
We love you and are praying.
Praying for Ethan and the rest of your family too.
Love, Vickie

 
At 7:15 AM, Anonymous Anonymous said...

we are continuing to pray and lift ellie and you all up to the Lord Jesus Christ. you are in our thoughts each and every day. Keep believing and trusting him for everything. love simons family

 
At 7:19 AM, Anonymous Dawn said...

He giveth more grace as our burdens grow greater, He sendeth more strength as our labors increase, He added afflictions He addeth His mercy, To multiplied trials He multiplies peace.
When we have exhausted our store of endurance, when our strength has failed ere the day is half done, when we reach the end of our hoarded resources, our Father's full giving is only begun.
His love has no limits, His grace has no measure, His power no boundary known unto men, For out of His infinite riches in Jesus, He giveth, and giveth, and giveth again.
This song keeps coming up in my own life and I thought it was neat it was one that you, Sara, mentioned that you sang into Ellie's ear. Praise God for his infinite grace and strength.
II Cor.12:9&10 "My grace is sufficient for you, for my power is made perfect in weakness."
I've been following your story since Christmas, when I heard of it through Nancy Haris. Thank you for sharing so honestly and just for your testimony of faith. God will honor your faith!
Holding and lifting each of you up before the throne of grace.
Dawn Cox (Howell, MI)

 
At 7:59 AM, Blogger Michael said...

Many are praying here.

Michael

 
At 8:36 AM, Blogger Leni said...

Our family here in NY is praying for you. I pray that you will feel God's constant presence with you while you go through all of this.

 
At 8:47 AM, Anonymous Anonymous said...

We have been praying for you daily and will continue to do so!

May you continue to find comfort in the Lord Jesus Christ!

Love and Prayers!
The Gustafson Family
Dan, Theresa, Noah and Gloria

2 Corinthians 1:3
"Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort,"

 
At 9:27 AM, Anonymous Alex Wiser said...

We continue to pray in Michigan, fully believing that God is watching over Ellie and your whole family during this most difficult journey. I asked the prayer warriors who read our son's carpage site to pray for Ellie and you all. I know there can never be too many hands lifted to heaven asking for God's mercy, grace, compassion, and peace for you all. Today, remember, I Peter 5:7, "Casting ALL your care on Him, for He careth for you."

Caring and Praying in Michigan,
The Wiser Family

 
At 10:06 AM, Anonymous Anonymous said...

Sarah, John, Ellie and Ethan,

Last night I watched the full moon rising over the canyon and I held a vision of you hear visiting in California. I saw Jerry, Uncle Mike, John and Ethan off on an adventure into the canyon while Sarah, Ellie, Grandma Lois, Shasta and I stayed back to do something girlie like shopping or a tea party with lots of yummy treats. I'm holding onto that vision for a future when you can visit us as a whole healthy family, laughing and loving, enjoying all the unfolding treasures of life and being a family. Hope to see you all on the ridge soon...
Love, Light and Prayers, The Garcias

 
At 10:41 AM, Blogger dondee said...

John, Sarah -
Many are praying for you and your family, and especially Ellie here in Northern California. Please know that we care. Thank you for sharing your heart, and keeping us updated. We are thankful that you have loved ones to write for you when you're unable to. Give our love also to your Mom, Nancy.
Dee Wilcox

 
At 11:28 AM, Blogger dondee said...

John and Sarah -
Please know that folks here in Northern California care and are praying for you there. Thank you for sharing your heart. I am thankful that you have special, sweet loved ones who can keep us updated even when you're unable to be at a computer. We're praying today that Ellie will experience peace and be able to rest during such a stressful ordeal in the ICU - and that you two also will continue to feel God's grace, love, patience, wisdom, and peace in your hearts as you go through it all with her.
Give your Mom, Nancy, my love also.
Dee Wilcox

 
At 3:03 PM, Anonymous Anonymous said...

Sarah and John,

This was forward to me from a friend and I wanted to share it with you. Our dear sweet Ellie is in His hands!

Thank you Loretta keeping us informed. I know that you have been an amazing source of support and an invaluable asset to John, Sarah and Ellie. Thank you for being His servant. It is so wonderful to watch the body of Christ work the way God intended.

Hands!

A basketball in my hands is worth about $19.

A basketball in Michael Jordan's hands is worth about $33 million.

It depends whose hands it's in.



A baseball in my hands is worth about $6.

A baseball in Roger Clemens' hands is worth $4.75 million.

It depends on whose hands it's in.



A tennis racket is useless in my hands.

A tennis racket in Andre Agassi's hands is worth millions.

It depends whose hands it's in.



A rod in my hands will keep away an angry dog.

A rod in Moses' hands will part the mighty sea.

It depends whose hands it's in.



A slingshot in my hands is a kid's toy.

A slingshot in David's hand is a mighty weapon.

It depends whose hands it's in.



Two fish and 5 loaves of bread in my hands is a couple of fish sandwiches.

Two fish and 5 loaves of bread in Jesus' hands will feed thousands.

It depends whose hands it's in.



Nails in my hands might produce a birdhouse.

Nails in Jesus Christ's hands will

produce salvation for the entire world.

It depends whose hands it's in.



As you see now, it depends whose hands it's in.

So put your concerns, your worries, your fears, your hopes, your dreams, your families and your relationships in God's hands because...

It depends whose hands it's in.


Love you guys so much. You are in our prayers constantly.

Love, Tonya (Ry too)

 

Post a Comment

<< Home