We will always remember Ellie for her love for others, her creativity, sensitivity, and delight in life! Ellie's light has spread far and wide... may it continue to shine in our hearts.

Friday, August 10, 2007


Thanks so much for praying for rain! We got a thunderstorm last night. This morning the air was so clean and cool. Ahhh. Loretta can breathe again, and all is right with the world!

I'm sorry for not writing much these days. This is not a permanent change. I think that I've finally begun to feel relaxed for the first time in almost a year. Even our month "off" in June wasn't really stress-free what with all of the life-changing decisions and such. This time has been different. I have been reveling in the slow pace of life and the fact that I have nothing to do except feed Ellie and dose her with remedies... and that's a responsibility that I share with Loretta. So I wish that I could tell you that I have a good excuse - been extremely busy - but I can't. I've been just relaxing. It feels so nice.

And now that being said, it's not that Ellie's new treatment plan is a walk in the park... it's just that compared with chemo, the pace is less intense. Both Loretta and I are are on "full alert" when it comes to watching for symptoms and the dosing schedule is time-intensive. Ellie gets a dose of her remedy every 15 minutes for 2.5 hours - every day! And by every day, I mean EVERY DAY for the next 2 years - at least. And we spend hours discussing the treatment and what it means for Ellie's life and how we can pay attention to all of the details...

Oh yes, I do still remember that I'm going to write and tell you all about Homeopathy. I'm just so relaxed (have I mentioned that yet?) that I can't seem to force myself to do anything about it. I kind of feel like a noodle. I tend to really enjoy TV, but sometimes I get a cup of tea or coffee and just sit and stare out the window - or even at the dark TV and do NOTHING! I'm almost giddy with the wonder of it all. Most mornings all of the muscles in my back and shoulders scream at me, but I think that every day one of them gives up. One of these days I'm sure I'll wake up pain free and not know what to do with myself! I'll probably gain 10 pounds what with all of the leisure, but somehow I just really don't care right now.

Ellie is making up for all of my inactivity by eating like a horse and promptly bouncing off the walls and burning off every last calorie! She's holding steady at 47-48 pounds and eating 500-600 calories at each meal. Yesterday morning she ate 2 pieces of toast, 2 hard boiled egg whites, 20 pieces of pineapple and a yogurt - and that was just breakfast! She has good color in her face and her hair is growing by the day. I'm sorry for the lack of pictures... I will try to get on that. Right now she's out in the pasture with Loretta and the horse and donkey. All of this (recently) fresh air and contact with animals is beyond therapeutic. Ellie is just blooming with life and health.

John and Ethan are doing well in Florida. I think if it wasn't for John's mom and sister, he would have taken a match to all of our belongings and walked away. They have been sorting and packing for over a week. It feels so good to know that we will not be burdened with so many things anymore. I feel like I can take a deep breath again. It's wonderful to have a fresh start. I just wish that it wasn't so long before we could be together again - it will probably be the beginning of October.

Thank you all for your patience with me. I still think of you all often and will do my best to keep you up on things.


At 10:14 PM, Anonymous Kristina said...

I am so happy to hear about your rest. We continue to pray for Ellie... and your whole family. May God be everything you need each day. I think it is wonderful you made the decision to be where you are.
Much love,
Kristina & Alexa

At 10:54 PM, Anonymous Anonymous said...

What a fabulous update! So glad to hear that you are RELAXING..finally! And, Ellie gets to be a kid again...in spite of mini-treatments every 15 minutes.

The rain WAS great, wasn't it!! We all needed that breath of cool clean fresh air and it is just beginning. Fall in Montana is just about the best...yippee!

Give Ellie a hug from all of us! We look forward to seeing her again and seeing that head of hair :)

always praying for your family, Sheri

At 3:47 AM, Blogger LindaSueBuhl said...

Thank you for the update - it is wonderful to hear that you are indeed experiencing a balm for your soul and Ellie's body. Hooray for the rain! The Lord is apparently cleansing lots of the earth this year - fires and floods and all forms in between. Really glad for Loretta - asthma gives depth to the lyrics of that song about the Lord being the air that we breath. So go take a nap - rest up from your resting it is all good.

At 4:43 AM, Blogger tricia said...

As much as I miss you, and thats ALOT, I am so happy you are where you are right now and able to rest and telax. Tell my Jellybean I miss her too.

At 6:53 AM, Blogger Mollie said...

So glad you are getting your much needed Rest!! Thanks for the update. Even without pictures, it's nice to imagine Ellie feeling well and hanging out with the animals.

At 7:23 AM, Anonymous Anonymous said...

oh my sweet friend,
I am so glad that you have been able to do nothing. Can I come too. :) Miss you sooo much. Love, Vickie

At 9:07 AM, Blogger Jessica said...

I miss you, Sarah! I'm glad Ellie seems to be thriving up there, I'm sure the change will be good for all of you.

At 10:39 AM, Anonymous Anonymous said...

Even I was breathing easier and lighter hearing about your time! It just seems 'right' and I am thrilled you are so relaxed! Praying that the boys can join you asap!!! Les

At 3:03 PM, Blogger Sheila said...

I am so very glad that you are having a relaxing time, and that it rained! You are all in my prayers. I am praying specifically for John and Ethan, with the job of figuring out everything 'back home', and for Ellie, as she makes this switch in routine. I'm so happy that she is able to just have fun.

God bless,

At 10:28 AM, Blogger tricia said...

I got the mugs and burst into tears.

At 8:45 AM, Anonymous Anonymous said...

so glad you are rested and relaxed. long time coming enjoy it. so thrilled to hear ellie is doing so well. we pray that john and ethan will be there soon and you will all be reunited.God bless you all. love the simons family

At 5:57 AM, Anonymous Anonymous said...

Hi Sarah,

We were just out in Montana, visiting Glacier National Park, among other things, and I must say that I understand your love for it! It is so beautiful and peaceful. I think it's the perfect place to be able to relax and focus on your family.

I'm so glad that Ellie is doing better. She will continue to be in our prayers.

Beth Anne

At 8:42 AM, Anonymous Salvador Tarin said...

Dear Sarah,

I have been doing some video translation work for brother Stan, you do not know me, but as soon as we learned of Ellie's problem, my family and Bible study cell started praying for Ellie. Everybody in the group was so glad to hear about Ellie feeling much better and "eating like a horse!"

We will keep praying!


At 9:14 AM, Anonymous Isai said...

This comment is sent by Isai, who has a problem of autism.


I hope you are OK, I have a problem and it is being removed from me. I believe in God with all my heart, and he is going to heal you, as he is going to heal me.

Isai (Jesse)


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