We will always remember Ellie for her love for others, her creativity, sensitivity, and delight in life! Ellie's light has spread far and wide... may it continue to shine in our hearts.

Wednesday, September 12, 2007

The Loneliest Road...

I meant to get this out to you days ago... and just now realized that it has already begun! John wanted to go on this ride/fund-raiser with the other fathers, but due to our moving across country, was not able to. I have shared with you earlier about the 3F8 Monoclonal Antibody treatment that we went to NY in hopes of getting for Ellie. Well, there have been further advancements towards even better treatment for children with Neuroblastoma and the parents have been called upon to raise the funds to turn the possibility into a reality. Even if Ellie never receives this treatment, we are whole-heartedly behind it, as it provides much needed hope for the many children with NB. Another huge hope for this endeavor is to raise awareness in this country about NB, as it is one of the lesser-known childhood cancers. The following information explains "The Loneliest Road":

"On September 10th, 2007, five fathers will cycle 3700 miles across the United States, from Sacramento California to Washington DC. Their mission is to raise awareness and money for cutting edge treatments that can be used to fight an aggressive childhood cancer called neuroblastoma - a cancer that all of their children fight.

Neuroblastoma is very rare. Because it is rare, treatment options are limited and funding for these cutting edge treatments does not flow freely from large non-profit organizations. The funding for research and development of new therapies comes from parents and families like these, who are faced with limited options to save their children.

We ask that you join us and help raise the funds needed to save our kids. We can't do it without your help. We would like to invite you to follow our journey, to record the ups and downs, and to get the message out that we are willing to do anything to raise this money to help our daughters and sons. Travel with us on The Loneliest Road.

To learn more about the Loneliest Road campaign and make a donation of any size, please visit the following web site:


Please share this link with as many friend as possible so we can raise the money for new cures for all the children facing this deadly child hood cancer called Nueroblastoma."

Please take the time to check out the website - the stories of the five fathers and their children closely echo our own. These are faces that we have seen in the hospital and at the Ronald McDonald House... they are names that we know... and they are friends.


At 7:14 AM, Anonymous Anonymous said...

praying for all of you each and every day. the lonliest road sounds like an awesome way to promote awareness as well as get support. i have been involved with relay for life for the past 3 years that includes all cancers.its through the american cancer society and its an awesome fundraiser.i do not know if you have heard of it. if you ever want onfo let me know. simons family

At 9:07 AM, Blogger c.g. said...

Thank you so much for sharing about the 'The Lonliest Road.."

The children are so beautiful and it tears at the heart to read how difficult it is to get funding.

May the men travel in safety and may their journey result in getting the funds needed to help in this most important fight.

At 12:56 PM, Blogger Sheila said...

Wow, that is fabulous. I'll be praying for these men.

God bless,


Post a Comment

<< Home